Chronic pain syndrome without an identifiable cause

For those of you who don’t follow me on Instagram might not know that I also suffer from Vulvodynia, same as many of you who are in this space.

Vulvodynia is known as a chronic pain syndrome that affects the vulvar area and occurs without an identifiable cause. The symptoms can be burning, stinging, irritation or sharp pain around on the vulva as well as at the entrance of the vagina. It is not a sexually transmitted disease. It is often too painful to have sex, use tampons or even be lightly touched.

My first time having sex it was like hitting a f*cking wall. Seriously. It’s kind of funny how the vagina can just be like “sorry dude, you are not getting in here” – but that was actually what was happening. Vulvodynia was the first thing I noticed with my pelvic floor and that’s when I realized something wasn’t right. It took me about 3-4 years and several doctors to give me the term “vulvodynia”, while I was diagnosed with Lichen Sclerosus a lot earlier than that. Some people might not understand how I can tell the pain from the two apart, but I do. It’s so clear to me what’s acting up.

Many women hear “it’s just all in your head”, “it’s probably thrush” – treating the woman for this can actually make the condition worse – , “it might be Lichen Sclerosus” – and when it’s not they then tell the woman “it’s just all in your head, we can’t find anything wrong”.

Just know this – there is nothing wrong with you (well, there is but there isn’t) , you are not just making it all up in your head. You need to know that you pain is valid, your frustration is valid, and you’re not alone.

The fact that you suffer from vulvodynia alone – the pain of it – can cause mental health issues, and the fact that you are not getting heard can cause even more pain, mentally.
You need to look after yourself, your body, and your mind.


Some of my fellow supportive ladies who raise awareness for Vulvodynia:

Check them out to for even more advice and support!

For my 30th birthday I am raising money for the National Vulvodynia Association and if you want to contribute you can check it out here!

With love,

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