What is Lichen Sclerosus?

I started working on a course for you ladies, kind of a “Lichen Sclerosus 101”, but truth be told my heart wasn’t in it anymore.
I had too much going on in my own life and it’s been too long since I started working on it. And if my heart’s not in it, you girl’s gotta listen. If you don’t listen to your body they energy is gonna end up somewhere stuck and cause pain.
However, there is some really valuable information that many of you need so I wanted to share some of it with you.

What is Lichen Sclerosus?
Lichen Sclerosus is a chronic inflammatory skin condition, also known as a sort of dermatitis condition, of the genital area.
It can happen to any gender, at any age – even though it is more common in women peri and post-menopause, and also in prepubertal girls. However, it can happen at any age. Walking proof right here!

It is also found that Lichen Sclerosus is six to ten times more common in women than men. Apparently Lichen Sclerosus favours the anogenital area, meaning the perineum – the part between the vaginal and anal opening – but we definitely know that Lichen Sclerosus can affect the entire vulvar area. 

Lichen Sclerosus can be asymptomatic, meaning that some of us don’t have any symptoms, or we simply just don’t have the most common ones, and that’s when many women get misdiagnosed, and also why Lichen Sclerosus is under diagnosed.

Here is just some random statistics for you:
The male-to-female ratio varies between 1:3 and 1:10. Here is something interesting – one review said that the disease occurs in about 50% of affected women prior to menopause, but it is predominantly diagnosed in older women. So why is this still not valid when you go to a doctor as a young woman with the symptoms of Lichen Sclerosus? 

Data from a large general statuary health insurance in Germany found that in 2014 gynaecologists encoded 69% of diagnosed Lichen Sclerosus cases, dermatologists 14% , general practitioners 12%, and urologists 5%.

Lichen Sclerosus occurs in the genital skin in 85 to 98% and on the extra-genital skin in only 15 to 20%.

Between 2 and 6% of patients with Lichen Sclerosus will progress to malignancy.  Which patients are more prone to this is not predictable, and it is therefore necessary to regard all as at risk (16). Due to this I would say that it is extremely important to push your cause if you feel like your doctor isn’t listening to you.
Go see a gynaecologist (if you not already have), go see another gynaecologist, or even better, go see a specialist. The tricky part though is that you need a referral for this and for that you need your doctor to see that there’s something not quite right.


I hope you like the information, please comment or send me a message if you do! Stay tuned for more in-dept information about Lichen Sclerosus.
As always, I love having you here.
Take care of yourself and stay safe.

With kindness,

 

 

 

Resources

Pérez-López, F. and Vieira-Baptista, P. (2017). Lichen sclerosus in women: a review. Climacteric, 20(4), pp.339-347.

 Kirtschig G: Lichen sclerosus—presentation, diagnosis and management. Dtsch Arztebl Int 2016; 113: 337–43. DOI: 10.3238/arztebl.2016.0337.  (Kirtschig, 2016)

https://www.ncbi.nlm.nih.gov/books/NBK538246/

Lee, A. and Fischer, G. (2018). Diagnosis and Treatment of Vulvar Lichen Sclerosus: An Update for Dermatologists. American Journal of Clinical Dermatology, 19(5), pp.695-706.  

 

 

2 Comments

  • lilievabien

    Hi
    Thank you very much. I will share this on my instagram lilievabien because it is so important for patients to have informations. Knowledge should be our priority. But it is a difficult work to do, searching and gathering.
    So thank you. I understand your feeling I think. I would do the same thing and I still do. But it is so “tedious”. So keep going in your way. That is your priority.

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